NAPS CONSORTIUM ┆ RECRUITMENT & EDUCATION

Driving Patient Recruitment

The North American Prodromal Synucleinopathy (NAPS) Consortium was established in 2015 to prepare for clinical trials by enrolling individuals with REM Sleep Behavior Disorder (RBD), develop biomarkers of synucleinopathies, and lead scientific research on RBD.

+6.6K

Website Visitors

+400

Potential RBD Registrants

$35M

Funding from the NIH

To drive patient enrollment in the NAPS Registry and build awareness for REM Sleep Behavior Disorder.

The consortium comprises a growing list of leading teaching hospitals, including Washington University in St. Louis, Harvard Medical School, the David Geffen Medical School at UCLA and the Mayo Clinic, among others. 

In its early days, the NAPS Consortium engaged Kaleidoscope Management group to help develop branding, key messaging, a digital presence on both social media and web and to develop a marketing roadmap aimed at patient recruitment and education.

KMG helped the NAPS Consortium to launch an online digital resource for patients, family members and industry partners to learn more about RBD. A key part of this ecosystem is the NAPS Registry. Since the launch of the website, we have reached over 6.6K visitors who are interested in REM Sleep Behavior Disorder, drove over 400 potential patients to the NAPS Registry and, most importantly, worked closely with the consortium leading up to and following their $35,000,000 Grant from the U.S. National Institutes of Health (NIH).

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